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| bionicgeekgrrl |
Tags: Coventry (CV)
I'm always fighting myself it seems.
Today it was me fighting my body and fatigue and pain.
One way I fight this is sugar and caffiene. Which has a side effect of making me hyper and maybe a bit more unpredictable than I usually am.
It is sadly about the only way I can manage to feel with it enough often to manage a night or day out at an event. And sometimes it is just plain unavoidable unless I sit and drink water at a munch, which I wouldn't do as it tastes too bland for me.
Sometimes this can I suspect make me hard to deal with, or perhaps unsettling to be around.
Until such time as I find a better way to cope with a night out it will continue to be a fight.
Without getting hyper on sugar I'd not go out to events I suspect, just can't manage it.
There is obviously a downside to this - other than the hyperness and so on - in that it takes time to wear off, so sleep is obviously made difficult and I feel even worse for the next few days or weeks afterwards as it uses so much energy up going out.
Last year in October I didn't listen to my body and just kept going out when I should of rested. I've learnt from that I think.
What my body is telling me is it needs a rest. So February will be a rest month.
I'm planning to goto 3 events before February and then nothing in February.
So after Heathens I won't be around until sometime in March.
Hopefully it will give me some time to rest and recharge and also a bit of time to think on a few things and start to get my head straight as I also see for first time a new psychiatrist in february, so things might be messy in my head for most of the month potentially depending upon how that goes.
I'm hoping the Gabapentin will start to help with the near constant pain and that the Pain Clinic referral will lead to positive help with dealing with pain generally as the codiene and Naproxen just don't work that great, given the side effects, but it is atm either those or nothing.
Don't quite know what this is meant to convey, just in a vague thoughtful mood.
| 16 Jan 12, 8:24 AM dannigirl1 UK(CV), 2 yrs  |
* hugs * I know how you feel with the fighting pain and fatigue. I constantly feel as if normal life is a battle, putting on a brave face. Standing tall and smiling when all you really want to do is curl up in bed and cry or sleep.
My pain meds are not doing there stuff either but have an appt with a rhuematologist in a week or so and hope he will give me results so i can move forwards.
You are doing well and do seem happier at the moment, just dont do too much.
Be safe
danni
xxx So very happy wearing my Masters collar | |
| 30 Jan 12, 1:26 AM bionicgeekgrrl UK(CV), 8 yrs |
It is really destroying isn't it I see my GP tomorrow, so maybe I'll get new pain meds tomorrow. But really I need to be sent to someone who knows about fibromyalgia better and/or a pain clinic. Neither seems to be happening atm. Oh well, struggle on! I put a brave face on, and the sugary drinks give me a sugar high so i look better than I actually am often. But I have been happier recently with recent events out etc. Not doing too much is a difficult thing to balance is my trouble. Some days leaving the flat at all is too much, others going out for the evening is. Behave you say? me? are you sure you've the right person? *giggles* |
