Scorpionic's profile . Scorpionic's homepage
 |
| Scorpionic |
Ok... so I was semi-diagnosed with Fibromyalgia (FMS) a few months ago (I say "semi" because there isn't any real definitive diagnosis for FMS, apparently - go figure!)
I've been taking the prescribed medication and done my best "to take things easy" as my GP advised. (Quite frankly there's a stark difference between "taking things easy" and "not being about to do anything" or "doing nothing at all"...! 
I'm now on a quest to research all sorts of alternatives to see if anything else might help alleviate the symptoms, etc.
Initially, I just didn't realise was how much this condition/illness/curse would affect me - or that it would last as long as it has (I thought, "Oh, that'll go in a few weeks and I'll be back to normal!"... Pah!)
Despite previously being an occasionally lazy-cow (I'll often procrastinate about things like housework etc., and it's always easy to find something else to do...) I've always been quite active and a bit of a do-er - with a dog to walk, helping out (previously) with a friend's horses, visiting friends and all the other "normal" stuff that life requires, etc, etc.
Last week was quite good - I managed to do quite a bit of walking (too much I now suspect) and general mooching about... but, for the last week I've been practically house-bound and spent Tuesday and Wednesday doddering about (awkwardly - it wasn't a pretty sight) like an old lady!!! 
I'm 40 not 80!!!
I've experienced various levels of pain (I don't do pain!), continual aches (a sort of all over flu-like feeling - which doesn't sound too bad but when it's constant it gets on your wick as well as zapping your energy!) and alternating periods of extreme exhaustion (sometimes even getting up to make a cuppa is a real mission!) WTF!!!
Apparently, all the symptoms I've had, and their sporadic nature, are all part of the condition and to be expected! Well, it's a total pain in the arse (actually, my arse is probably the only bit of me that doesn't hurt! 
) ~ BUT ~ I'm not going to let this thing beat me!!! I'm still learning to live with it, and sometimes I will be a lot slower than I'd like... but, by heck, it's not going to stop me!!!!
{PS: I'm not looking for sympathy - I'm just having a bit of a blurt out! (it's cathartic, don't ya know!)}
As always,
Still me! 
Scorps
| 1 Apr 11, 12:04 PM hollythedolly UK(NN), 2 yrs   |
I've sent a private memo | |
| 1 Apr 11, 12:06 PM dominalush UK(RG), 5 yrs  |
you have my total sympathy.I too have a similar illness,i have had M.E.for a long time.Theres a site called butyoudontlooksick.com which is really good for folk with these kind of illnesses.get in touch with me if you fancy a chat.Good luck and keep hopeful.Min x to give pain is my pleasure...... | |
| 1 Apr 11, 12:10 PM Corwin UK(L), 11 yrs |
I was diagnosed with Fibromyalgia about 5 years ago, so I can fully sympathise because it's really hard in the beginning to work out how to deal with it and still do the things you enjoy. It is manageable though and if you ever need someone to chat to about it feel free to nab me any time. If you look in the mirror and don't like what you see | |
| 1 Apr 11, 12:11 PM Scorpionic UK(BN), 6 yrs    |
Thank you Scorps | |
| 1 Apr 11, 12:12 PM Scorpionic UK(BN), 6 yrs |
Thank you Scorps | |
| 1 Apr 11, 1:05 PM epona74 UK(SL), 7 yrs |
I've been suffering from an undefined (til recently) chronic fatigue situation. Thankfully low on the pain, but nevertheless severely life-limiting! Finally discovered that I have low vitamin d, so massive supplementation is helping, but even now I'm not back to normal by any stretch of the imagination, and have days (like yesterday) where I can barely get out of bed. I'm learning how to deal, and how far to push, but it certainly frustrates the life out of me sometimes! Especially when so many people just don't understand that no, I'm not being lazy, I genuinely can't do that today. Last night I had to make the choice...cook something decent, and risk falling asleep in the middle of eating it, or cook what was ready and easily available, though possibly a little less nutritious, and be able to eat it all?
You have my sympathy, and if you want to chat, please do let me know And the butyoudontlooksick website is awesome! Especially spoon theory! For every minute you are angry you lose sixty seconds of happiness. (Ralph Waldo Emerson) |
