fibromyalgia (10)

teach_me's profile . teach_me's homepage

teach_me
Posted by teach_me on Tue 1 Jul 08, 3:59 PM

went to the hospital this morning, finally got an appointment with the rheumatologist ...... he is 99% certain i have fibromyalgia, apparently everything that i've been moaning to the doctor about for the last few years are all symptoms, including the weeing and bladder pain.

i have had blood tests galore, (hormones, infection, etc)and urine tests, and nothing has shown up,other than i'm not menopausal lol and everything is normal...... but you know something isn't right when you constantly feel like you have been run over by a train.

so i've had another blood test today, for vitamin deficiencies, and thyroid problems, and a couple of others .......

and he's put me on amitriptyline, he reckons, that, combined with the duloxetine i'm already on, should help me sleep and hopefully take some of the pain away. he is also sending me for physio

i thought i'd feel better if i got some sort of diagnosis ..... but now after having read up on it, i don't know how to feel other than pee'd off and fed up and miserable.

anyone have it or know anyone with it, and have any advice please?

Lynda xx

Replies

1 Jul 08, 4:24 PM
Tooddles
UK, 4 yrs

my mum has this and has had it for a number of years in her neck.. i have another friend who has it in his shoulder... i will try and find out some details for you darling and will mail you.
txxxx
Komaki xxxx
i'm dreaming of a pink Christmasssssssssssssssss

1 Jul 08, 4:33 PM
arwenNS
UK, 4 yrs

I was diagnosed with Fibro about 5 yrs ago. I also have a Fab Domme friend here on IC that also has Fibro.
It's quite difficult to talk to people about your aches,pains and generally feeling like shit when they don't understand fibromyalgia. It's also good that you have a name for the way you were/are feeling and that your not going mad.
Just shout if you want to have a blether.
arwen xxx
a 4 foot, 11 and 3/4 inch elf.
The only unnatural sex act is that which you cannot perform. Alfred Kinsey

1 Jul 08, 5:34 PM
pam_minxy
UK, 6 yrs

i would also suggest trying the nhs Expert Patient Programme - its run by nhs but delivered by people who have long term health conditions - it doesn't deal with individual illnesses but rather with the effects that any long term illness impacts on your life and how life impacts on your illness - so that you can control your condition instead of the condition controlling you
it only lasts for 6 a half day sessions delivered once a week. and boy have i seen some amazing changes in people
there is usually at least one or more people with fibromyalgia on most of the courses i have delivered - including my co tutor on my current course.
it can be a bugger of a condition so you have my sympathy
pam
ps next time ya find a kitten that needs a home i know someone looking.
We have to accept other people's "imperfections" if we want them to accept ours
SYNCHRONICITY ROCKS

1 Jul 08, 5:40 PM
pinkminx
UK(B), 3 yrs
FM is a shit although i was happy to hear that i wasn't going mad, and the searing agony i'm in all the time has a reason, to find all you can do is "manage" it and not cure it really knocked me about.
Sounds like you have a supportive medical team, which is really really good, and hopefully the meds will help you get a supportive social network in place too, to help when you physically cannot do *anything*.
Sometimes diet changes can help with it, but as you've probably read - it's a syndrome not a specific illness, so it is a matter of trial and error to find what works *for you*
good luck hunny pie
xx

...It seemed like a good idea at the time...
http://chopmusic.co.uk/ . . . http://www.brumbazaar.co.uk/ . . . http://www.londonalternativemarket.com/

1 Jul 08, 5:55 PM
AllBarkNoBite
UK(BS), 13 mths

I havea similar condition called RSD. Yes it hurts and yes it makes you think all sorts of horrible things. If you ever want to chat feel free I'm on Diclofenac Sodium, not that it's really doing anything..
Elena

1 Jul 08, 5:56 PM
WhiteKnight1369
UK, 5 yrs
Happy to come over and do some work with you.
I might just have something that could be of help for you
Some Men know that a light touch of the tongue, running from a woman's toes to her ears, lingering in the softest way possible in various places in between, given often enough and sincerely enough, would add immeasurably to world peace. Marianne Williamson

1 Jul 08, 6:48 PM
abby1983
UK(KA), 4 yrs
I have it I have had it since I was 9 and was diagnosed in February this year.
If you want a chat or any of the links to stuff I found give me a shout.
It's a horrible thing to live with and you have my sympathies. xx
http://fibrowhat1.wordpress.com - Help raise awareness for fibromyalgia

1 Jul 08, 10:40 PM
SirLeo
UK(SN), 8 yrs
Y! They thought I had FM but it turned out to be Ceoliac desease.... gluten intolerance ... killed off my stomach and stopped me from absorbing nutrients... was in severe pain,,, always tied,,, stomach problems... and some others besides..
Took gluten out of my diet and pain went.... might be worth concidering.
SL
Who said I should be stricter with her ????

2 Jul 08, 12:49 PM
teach_me
UK(OL), 2 yrs
thanks for all the replies, it's good to know i'm not alone, and not going mad (well madder anyway)and i'm sure i will be contacting some of you soon i've a lot to take in and read ... when i can get my head out of my bum lol .... oh damn i forgot, i can't bend my head that far any more
Lynda xx
Women and cats will do as they please and men and dogs should get used to it
if you have a problem with something i've said or done ........ feel free to tell DM, .......so he can rip the piss out of you too

31 Jul 08, 11:02 PM
trussed_me
UK(NW), 2 yrs

Sorry to hear you're not well, hope things get better for you sweetie.
x.


	©1997-2009 Informed Consent